<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>5</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Büyüktür, Ayşe G.</style></author><author><style face="normal" font="default" size="100%">Hung, Pei-Yao</style></author><author><style face="normal" font="default" size="100%">Meade, Michelle</style></author><author><style face="normal" font="default" size="100%">Mark W. Newman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Sociotechnical Design for the Care of People with Spinal Cord Injuries</style></title><secondary-title><style face="normal" font="default" size="100%">Designing Healthcare That Works:  A Socio-technical Approach</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2018</style></year></dates><pages><style face="normal" font="default" size="100%">1-18</style></pages><language><style face="normal" font="default" size="100%">eng</style></language></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Büyüktür, Ayşe G.</style></author><author><style face="normal" font="default" size="100%">Hung, Pei-Yao</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Mark W. Newman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Supporting Collaboratively Constructed Independence: A Study of Spinal Cord Injury</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW’18)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">healthcare; articulation work; information work; chronic illness; collaboration; patient help; patient information; caregiving; temporality; temporal misalignment; information overload; health informatics; medical informatics.</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2018</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Patients are often overwhelmed in their efforts to understand their illnesses and determine what actions to take. In this paper, we want to show why care is sometimes not co-managed well between clinicians and patients, and the necessary information is often not well coordinated. Through a 2.5-year field study of an adult bone marrow transplant (BMT) clinic, we show there are different experiences of temporal ordering, or temporalities, between clinicians and patients (and their caregivers). We also show that misalignments between these temporalities can seriously affect the articulation (coordination) and information work that must go on for people to co-manage their conditions with clinicians. As one example, information flows can be misaligned, as a result of differing temporalities, causing sometimes an overwhelming amount of information to be presented and sometimes a lack of properly contextualized information. We also argue that these misalignments in temporalities, important in medicine, are a general coordination problem. Author Keywords&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Büyüktür, Ayşe G.</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Mark W. Newman</style></author><author><style face="normal" font="default" size="100%">Hung, Pei-Yao</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Design Considerations for Semi-Automated Tracking: Self-Care Plans in Spinal Cord Injury</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of Pervasive Health 2017</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">medical informatics; patient-centered care; health IT; self-care plans; self-monitoring; semi-automated tracking; quantified self; context-aware environments; disability; rehabilitation; requirements; user needs; healthcare; healthcare IT</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2017</style></year></dates><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Self-care in Spinal Cord Injury (SCI) is highly complex and individualized. Patients struggle to adapt to life with SCI, especially when they go home after rehabilitation. We conducted a field study to understand how self-care plans work for patients in their lived experience and what requirements there might be for an augmentative system. We found that patients develop their own self-care plans over time, and that routinization plays a key role in SCI self-care. Importantly, self-care activities exist in different states of routinization that have implications for the technological support that should be provided. Our findings suggest that self-care can be supported by different types of semi-automated tracking that account for the different routinization of activities, the collaborative nature of care, and the life-long, dynamic nature of this condition. The findings from our study also extend recent guidelines for semi-automated tracking in health&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Büyüktür, Ayşe G.</style></author><author><style face="normal" font="default" size="100%">Ackerman, Mark S.</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Information Work in Bone Marrow Transplant: Reducing Misalignment of Perspectives</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">articulation work</style></keyword><keyword><style  face="normal" font="default" size="100%">bone marrow transplant</style></keyword><keyword><style  face="normal" font="default" size="100%">caregiving</style></keyword><keyword><style  face="normal" font="default" size="100%">chronic illness</style></keyword><keyword><style  face="normal" font="default" size="100%">collaboration</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">information overload</style></keyword><keyword><style  face="normal" font="default" size="100%">information work</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics.</style></keyword><keyword><style  face="normal" font="default" size="100%">patient help</style></keyword><keyword><style  face="normal" font="default" size="100%">patient information</style></keyword><keyword><style  face="normal" font="default" size="100%">temporal misalignment</style></keyword><keyword><style  face="normal" font="default" size="100%">temporality</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2017</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><pages><style face="normal" font="default" size="100%">1740–1752</style></pages><isbn><style face="normal" font="default" size="100%">978-1-4503-4335-0</style></isbn><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Patients are often overwhelmed in their efforts to understand their illnesses and determine what actions to take. In this paper, we want to show why care is sometimes not co-managed well between clinicians and patients, and the necessary information is often not well coordinated. Through a 2.5-year field study of an adult bone marrow transplant (BMT) clinic, we show there are different experiences of temporal ordering, or temporalities, between clinicians and patients (and their caregivers). We also show that misalignments between these temporalities can seriously affect the articulation (coordination) and information work that must go on for people to co-manage their conditions with clinicians. As one example, information flows can be misaligned, as a result of differing temporalities, causing sometimes an overwhelming amount of information to be presented and sometimes a lack of properly contextualized information. We also argue that these misalignments in temporalities, important in medicine, are a general coordination problem.&lt;/p&gt;</style></abstract></record></records></xml>