<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Elizabeth Kaziunas</style></author><author><style face="normal" font="default" size="100%">Ayse G Büyüktür</style></author><author><style face="normal" font="default" size="100%">Jones, Jasmine</style></author><author><style face="normal" font="default" size="100%">Choi, Sung W</style></author><author><style face="normal" font="default" size="100%">David A Hanauer</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Transition and Reflection in the Use of Health Information: The Case of Pediatric Bone Marrow Transplant Caregivers</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work &amp; Social Computing (CSCW&#039;15)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">caregiver</style></keyword><keyword><style  face="normal" font="default" size="100%">caregiving</style></keyword><keyword><style  face="normal" font="default" size="100%">emotional work</style></keyword><keyword><style  face="normal" font="default" size="100%">health and wellness</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">healthcare technology</style></keyword><keyword><style  face="normal" font="default" size="100%">interactional work</style></keyword><keyword><style  face="normal" font="default" size="100%">medication informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">patient information</style></keyword><keyword><style  face="normal" font="default" size="100%">patients</style></keyword><keyword><style  face="normal" font="default" size="100%">pediatric</style></keyword><keyword><style  face="normal" font="default" size="100%">reflection</style></keyword><keyword><style  face="normal" font="default" size="100%">reflecton work</style></keyword><keyword><style  face="normal" font="default" size="100%">social worlds</style></keyword><keyword><style  face="normal" font="default" size="100%">work</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">02/2015</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><publisher><style face="normal" font="default" size="100%">ACM</style></publisher><pages><style face="normal" font="default" size="100%">1763-1774</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;The impact of health information on caregivers is of increasing interest to HCI/CSCW in designing systems to support the social and emotional dimensions of managing health. Drawing on an interview study, as well as corroborating data including a multi-year ethnography, we detail the practices of caregivers (particularly parents) in a bone marrow transplant (BMT) center. We examine the interconnections between information and emotion work performed by caregivers through a liminal lens, highlighting the BMT experience as a time of transition and reflection in which caregivers must quickly adapt to the new social world of the hospital and learn to manage a wide range of patient needs. The transition from parent to &#039;caregiver&#039; is challenging, placing additional emotional burdens on the intensive information work for managing BMT. As a time of reflection, the BMT experience also provides an occasion for generative thinking and alternative approaches to health management. Our study findings call for health systems that reflect a design paradigm focused on &#039;transforming lives&#039; rather than &#039;transferring information.&#039;&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Elizabeth Kaziunas</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Veinot, Tiffany C.E.</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Localizing Chronic Disease Management: Information Work and Health Translations</style></title><secondary-title><style face="normal" font="default" size="100%">Association for Information Science and Technology (ASIS&amp;T) Annual Meeting</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">community health</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">health translations</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2013</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Based on interviews with people who had diabetes, high blood pressure, and kidney disease in Flint, Michigan, we found people actively doing information work to manage their health in the face of poverty, potentially violent conditions, high stress, and a distrust of institutionalized medicine. More specifically, we observed people translating information into the context of their everyday lives. We present various translations of health information in the form of local strategies for chronic illness management. Study findings highlight initial implications to support health information services on a community level.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Huh, Jina</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Collaborative help in chronic disease management: supporting individualized problems</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM Conference on Computer–Supported Cooperative Work (CSCW’12)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">diabetes</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">QA</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">01/02/2012</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Coping with chronic illness disease is a long and lonely journey, because the burden of managing the illness on a daily basis is placed upon the patients themselves. In this paper, we present our findings for how diabetes patient support groups help one another find individualized strategies for managing diabetes. Through field observations of face-to-face diabetes support groups, content analysis of an online diabetes community, and interviews, we found several help interactions that are critical in helping patients in finding individualized solutions. Those are: (1) patients operationalize their experiences to easily contextualize and share executable strategies; (2) operationalization has to be done within the larger context of sharing illness trajectories; and (3) the support groups develop common understanding towards diabetes management. We further discuss how our findings translate into design implications for supporting chronic illness patients in online community settings.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Xiaomu Zhou</style></author><author><style face="normal" font="default" size="100%">Kai Zheng</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">David A Hanauer</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Cooperative documentation: the patient problem list as a nexus in electronic health records</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM 2012 Conference on Computer Supported Cooperative Work (CSCW ’12)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">medical information</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">01/02/2012</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><pages><style face="normal" font="default" size="100%">853-862</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;The patient Problem List (PL) is a mandated documentation component of electronic health records supporting the longitudinal summarization of patient information in addition to facilitating the coordination of care by multidisciplinary medical teams. In this paper, we report an ethnographic study that examined the institutionalization of the PL. Specifically, we explored: (1) how different groups (primary care providers, inpatient hospitalists, specialists, and emergency doctors) perceived the purposes of the PL differently; (2) how these deviated perceptions might affect their use of the PL; and (3) how the technical design of the PL facilitated or hindered the clinical practices of these groups. We found significant ambiguity regarding the definition, benefits, and use of the PL across different groups. We also found that certain groups (e.g. primary care providers) had developed effective cooperative strategies regarding the use of the PL; however, suboptimal usage was common among other user types, which could have a profound impact on quality of care and safety. Based on these findings, we provide suggestions to improve the design of the PL, particularly on strengthening its support on longitudinal and cooperative clinical practices.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Xiaomu Zhou</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Kai Zheng</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">CPOE workarounds, boundary objects, and assemblages</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM Conference on Human Factors in Computing Systems (CHI’11)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">assemblage</style></keyword><keyword><style  face="normal" font="default" size="100%">boundary object</style></keyword><keyword><style  face="normal" font="default" size="100%">CPOE</style></keyword><keyword><style  face="normal" font="default" size="100%">cscw</style></keyword><keyword><style  face="normal" font="default" size="100%">EHR</style></keyword><keyword><style  face="normal" font="default" size="100%">electronic patient records</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">medical information</style></keyword><keyword><style  face="normal" font="default" size="100%">medical orders</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2011</style></year><pub-dates><date><style  face="normal" font="default" size="100%">5/2010</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;We conducted an ethnographically based study at a large teaching hospital to examine clinician workarounds engendered by the adoption of a Computerized Prescribe Order Entry (CPOE) system. Specifically, we investigated how adoption of computerized systems may alter medical practice, order management in particular, as manifested through the working-around behavior developed by doctors and nurses to accommodate the changes in their day-to-day work environment. In this paper, we focus on clinicians’ workarounds, including those workarounds that gradually disappeared and those that have become routinized. Further, we extend the CSCW concept of boundary object (to &quot;assemblage&quot;) in order to understand the workarounds created with CPOE system use and the changing nature of clinical practices that are increasingly computerized.&lt;/p&gt;
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