<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Ayse G Büyüktür</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Issues and opportunities in transitions from speciality care: a field study of bone marrow transplant</style></title><secondary-title><style face="normal" font="default" size="100%">Behaviour &amp; Information Technology</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">chronic illness</style></keyword><keyword><style  face="normal" font="default" size="100%">continuity of care</style></keyword><keyword><style  face="normal" font="default" size="100%">expertise sharing</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">healthcare</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">medical work</style></keyword><keyword><style  face="normal" font="default" size="100%">patient information</style></keyword><keyword><style  face="normal" font="default" size="100%">speciality transition</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2015</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete-OnlyDOI</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">34</style></volume><pages><style face="normal" font="default" size="100%">566–584</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Transitional points in patient care, such as handoffs and hospital discharges, are known to have unique information challenges. Transitions following long-term care involve even more complex processes. In this study, we examine the informational and contextual issues for patients transitioning from the care of specialists who have come to know them through long-term partnerships to clinicians potentially less familiar with patients’ chronic care concerns. The context is bone marrow transplant (BMT); specifically allogeneic transplants, which involve risk for particular chronic complications and a long-term process that requires close monitoring of patients by BMT specialists for at least a year beyond the actual transplant procedure. Based on a 16-month field study, we examine patient experience and clinician viewpoints regarding the transition of patient responsibility from BMT clinicians to primary care or oncologists, and detail the important issues for patients and clinicians.&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Elizabeth Kaziunas</style></author><author><style face="normal" font="default" size="100%">Ayse G Büyüktür</style></author><author><style face="normal" font="default" size="100%">Jones, Jasmine</style></author><author><style face="normal" font="default" size="100%">Choi, Sung W</style></author><author><style face="normal" font="default" size="100%">David A Hanauer</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Transition and Reflection in the Use of Health Information: The Case of Pediatric Bone Marrow Transplant Caregivers</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work &amp; Social Computing (CSCW&#039;15)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">caregiver</style></keyword><keyword><style  face="normal" font="default" size="100%">caregiving</style></keyword><keyword><style  face="normal" font="default" size="100%">emotional work</style></keyword><keyword><style  face="normal" font="default" size="100%">health and wellness</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">healthcare technology</style></keyword><keyword><style  face="normal" font="default" size="100%">interactional work</style></keyword><keyword><style  face="normal" font="default" size="100%">medication informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">patient information</style></keyword><keyword><style  face="normal" font="default" size="100%">patients</style></keyword><keyword><style  face="normal" font="default" size="100%">pediatric</style></keyword><keyword><style  face="normal" font="default" size="100%">reflection</style></keyword><keyword><style  face="normal" font="default" size="100%">reflecton work</style></keyword><keyword><style  face="normal" font="default" size="100%">social worlds</style></keyword><keyword><style  face="normal" font="default" size="100%">work</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2015</style></year><pub-dates><date><style  face="normal" font="default" size="100%">02/2015</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><publisher><style face="normal" font="default" size="100%">ACM</style></publisher><pages><style face="normal" font="default" size="100%">1763-1774</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;The impact of health information on caregivers is of increasing interest to HCI/CSCW in designing systems to support the social and emotional dimensions of managing health. Drawing on an interview study, as well as corroborating data including a multi-year ethnography, we detail the practices of caregivers (particularly parents) in a bone marrow transplant (BMT) center. We examine the interconnections between information and emotion work performed by caregivers through a liminal lens, highlighting the BMT experience as a time of transition and reflection in which caregivers must quickly adapt to the new social world of the hospital and learn to manage a wide range of patient needs. The transition from parent to &#039;caregiver&#039; is challenging, placing additional emotional burdens on the intensive information work for managing BMT. As a time of reflection, the BMT experience also provides an occasion for generative thinking and alternative approaches to health management. Our study findings call for health systems that reflect a design paradigm focused on &#039;transforming lives&#039; rather than &#039;transferring information.&#039;&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Elizabeth Kaziunas</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Veinot, Tiffany C.E.</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Localizing Chronic Disease Management: Information Work and Health Translations</style></title><secondary-title><style face="normal" font="default" size="100%">Association for Information Science and Technology (ASIS&amp;T) Annual Meeting</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">community health</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">health translations</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2013</style></year><pub-dates><date><style  face="normal" font="default" size="100%">10/2013</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Based on interviews with people who had diabetes, high blood pressure, and kidney disease in Flint, Michigan, we found people actively doing information work to manage their health in the face of poverty, potentially violent conditions, high stress, and a distrust of institutionalized medicine. More specifically, we observed people translating information into the context of their everyday lives. We present various translations of health information in the form of local strategies for chronic illness management. Study findings highlight initial implications to support health information services on a community level.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Huh, Jina</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Collaborative help in chronic disease management: supporting individualized problems</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM Conference on Computer–Supported Cooperative Work (CSCW’12)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">diabetes</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">QA</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">01/02/2012</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Coping with chronic illness disease is a long and lonely journey, because the burden of managing the illness on a daily basis is placed upon the patients themselves. In this paper, we present our findings for how diabetes patient support groups help one another find individualized strategies for managing diabetes. Through field observations of face-to-face diabetes support groups, content analysis of an online diabetes community, and interviews, we found several help interactions that are critical in helping patients in finding individualized solutions. Those are: (1) patients operationalize their experiences to easily contextualize and share executable strategies; (2) operationalization has to be done within the larger context of sharing illness trajectories; and (3) the support groups develop common understanding towards diabetes management. We further discuss how our findings translate into design implications for supporting chronic illness patients in online community settings.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Xiaomu Zhou</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Kai Zheng</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">CPOE workarounds, boundary objects, and assemblages</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the ACM Conference on Human Factors in Computing Systems (CHI’11)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">assemblage</style></keyword><keyword><style  face="normal" font="default" size="100%">boundary object</style></keyword><keyword><style  face="normal" font="default" size="100%">CPOE</style></keyword><keyword><style  face="normal" font="default" size="100%">cscw</style></keyword><keyword><style  face="normal" font="default" size="100%">EHR</style></keyword><keyword><style  face="normal" font="default" size="100%">electronic patient records</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">health information</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">medical information</style></keyword><keyword><style  face="normal" font="default" size="100%">medical orders</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2011</style></year><pub-dates><date><style  face="normal" font="default" size="100%">5/2010</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;We conducted an ethnographically based study at a large teaching hospital to examine clinician workarounds engendered by the adoption of a Computerized Prescribe Order Entry (CPOE) system. Specifically, we investigated how adoption of computerized systems may alter medical practice, order management in particular, as manifested through the working-around behavior developed by doctors and nurses to accommodate the changes in their day-to-day work environment. In this paper, we focus on clinicians’ workarounds, including those workarounds that gradually disappeared and those that have become routinized. Further, we extend the CSCW concept of boundary object (to &quot;assemblage&quot;) in order to understand the workarounds created with CPOE system use and the changing nature of clinical practices that are increasingly computerized.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>47</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Xiaomu Zhou</style></author><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Kai Zheng</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Computerization and information assembling process: nursing work and CPOE adoption</style></title><secondary-title><style face="normal" font="default" size="100%">Proceedings of the 1st ACM International Health Informatics Symposium (IHI ’10)</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">CPOE</style></keyword><keyword><style  face="normal" font="default" size="100%">electronic medical records</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword><keyword><style  face="normal" font="default" size="100%">information assembling</style></keyword><keyword><style  face="normal" font="default" size="100%">information system</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">personal sheet</style></keyword><keyword><style  face="normal" font="default" size="100%">shift change</style></keyword><keyword><style  face="normal" font="default" size="100%">working document</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2010</style></year><pub-dates><date><style  face="normal" font="default" size="100%">11/2010</style></date></pub-dates></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;This paper presents an ethnographic study investigating how nurses assemble information to start their shift’s work. We examined this process before and after the adoption of a Computerized Prescriber Order Entry (CPOE) system in an inpatient unit of a large teaching hospital. Before the CPOE adoption, nurses used several collaboratively-created group working documents to assist in this information assembling process; after the CPOE adoption, they mainly used the CPOE itself for their information needs. We found while computerization facilitated medical data assembling process and improved order handling practice, it also resulted in some information gaps in understanding patients in their larger care context. We analyzed what it means when the computerization of medical information turns local knowledge into more readily available and public information objects, as well as what that means for patients and patient care.&lt;/p&gt;
</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>5</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Barbara Mirel</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Barbara M. Hayes</style></author><author><style face="normal" font="default" size="100%">William Aspray</style></author></secondary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Designing Information to Facilitate Chronic Disease Management: Clinician-Patient Interactions in Diabetes Care</style></title><secondary-title><style face="normal" font="default" size="100%">Health Informatics: A Patient-Centered Approach to Diabetes</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">diabetes</style></keyword><keyword><style  face="normal" font="default" size="100%">health communication</style></keyword><keyword><style  face="normal" font="default" size="100%">health informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">information access</style></keyword><keyword><style  face="normal" font="default" size="100%">medical informatics</style></keyword><keyword><style  face="normal" font="default" size="100%">patient care</style></keyword><keyword><style  face="normal" font="default" size="100%">patient information</style></keyword><keyword><style  face="normal" font="default" size="100%">support groups</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2010</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete</style></url></web-urls></urls><publisher><style face="normal" font="default" size="100%">MIT Press</style></publisher><pub-location><style face="normal" font="default" size="100%">Cambridge, MA</style></pub-location><pages><style face="normal" font="default" size="100%">364-406</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;This chapter examines the information needs of patients like the participants with diabetes in the observed group. This group of people had previously demonstrated receptivity to managing their diabetes for a productive life and lifestyle. As with a large proportion of patients with diabetes, however, sustaining this commitment was&lt;br&gt;difficult.&lt;/p&gt;&lt;p&gt;Similar to the complex needs of people with other chronic medical conditions, these patients’ sustained self-care was confounded by&lt;br&gt;multiple physiological conditions, emotional and psychological responses, social support needs, competing priorities, and varying&lt;br&gt;competences in communicating needs to the medical community (Klemm &amp;amp; Wheeler, 2005).&amp;nbsp; Although these patients did not need constant attention and help, and although they were self-motivated and almost entirely well educated, the information resources that are typically provided did not seem to work for them.&lt;/p&gt;&lt;p&gt;Through studying this particularly engaged and motivated group of longterm patients with diabetes, we were able to delineate critical problems that even engaged and motivated people trying to take care of a chronic disease necessarily face. Observing these participants, then, allowed us to see where standard information sources were lacking.&lt;/p&gt;&lt;p&gt;This chapter also explores what we need to understand better about content and framing in information exchanges to identify possible approaches for evoking patient responsiveness and for fostering a reflectivity-for-action that may have sustained results. As the care manager who led this group said, the purpose of the group was to provide information for future action.&amp;nbsp; Our analysis shows that these participants engaged in personalized information exchanges to understand the trade-offs and alternatives they faced.&lt;/p&gt;</style></abstract></record></records></xml>