<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Maher, Molly</style></author><author><style face="normal" font="default" size="100%">Kaziunas, Elizabeth</style></author><author><style face="normal" font="default" size="100%">Ackerman, Mark</style></author><author><style face="normal" font="default" size="100%">Derry, Holly</style></author><author><style face="normal" font="default" size="100%">Forringer, Rachel</style></author><author><style face="normal" font="default" size="100%">Miller, Kristen</style></author><author><style face="normal" font="default" size="100%">O&#039;Reilly, Dennis</style></author><author><style face="normal" font="default" size="100%">An, Larry C</style></author><author><style face="normal" font="default" size="100%">Tewari, Muneesh</style></author><author><style face="normal" font="default" size="100%">Hanauer, David A</style></author><author><style face="normal" font="default" size="100%">Choi, Sung Won</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool</style></title><secondary-title><style face="normal" font="default" size="100%">Biology of Blood and Marrow Transplantation</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">bone marrow transplant</style></keyword><keyword><style  face="normal" font="default" size="100%">caregivers</style></keyword><keyword><style  face="normal" font="default" size="100%">design group</style></keyword><keyword><style  face="normal" font="default" size="100%">engagement</style></keyword><keyword><style  face="normal" font="default" size="100%">health IT</style></keyword><keyword><style  face="normal" font="default" size="100%">patient activation</style></keyword><keyword><style  face="normal" font="default" size="100%">pediatric; hematopoietic cell transplantation</style></keyword><keyword><style  face="normal" font="default" size="100%">user-centered design</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2016</style></year></dates><urls><web-urls><url><style face="normal" font="default" size="100%">Complete-OnlyDOI</style></url></web-urls></urls><volume><style face="normal" font="default" size="100%">22</style></volume><pages><style face="normal" font="default" size="100%">349–358</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Health information technology (IT) has opened exciting avenues for capturing, delivering and sharing data, and offers the potential to develop cost-effective, patient-focused applications. In recent years, there has been a proliferation of health IT applications such as outpatient portals. Rigorous evaluation is fundamental to ensure effectiveness and sustainability, as resistance to more widespread adoption of outpatient portals may be due to lack of user friendliness. Health IT applications that integrate with the existing electronic health record and present information in a condensed, user-friendly format could improve coordination of&amp;nbsp;care and communication. Importantly, these applications should be developed systematically with appropriate methodological design and testing to ensure usefulness, adoption, and sustainability. Based on our prior work that identified numerous information needs and challenges of HCT, we developed an experimental prototype of a health IT tool, the BMT Roadmap. Our goal was to develop a tool that could be used in the real-world, daily practice of HCT patients and caregivers (users) in the inpatient setting. Herein, we examined the views, needs, and wants of users in the design and development process of the BMT Roadmap through user-centered Design Groups. Three important themes emerged: 1) perception of core features as beneficial (views), 2)&amp;nbsp;alerting the design team to potential issues with the user interface (needs); and 3) providing a deeper understanding of the user experience in terms of wider psychosocial requirements (wants). These findings resulted in changes that led to an improved, functional BMT Roadmap product, which will be tested as an intervention in the pediatric HCT population in the fall of 2015 (&lt;a data-itrprs=&quot;Y&quot; data-url=&quot;/science/RedirectURL?_method=externObjLink&amp;amp;_locator=url&amp;amp;_cdi=272926&amp;amp;_issn=10838791&amp;amp;_origin=article&amp;amp;_zone=art_page&amp;amp;_targetURL=http%253A%252F%252FClinicalTrials.gov&quot; href=&quot;http://clinicaltrials.gov/&quot; onclick=&quot;var newWidth=((window.screen.availWidth*90)/100);var newHeight=((window.screen.availHeight*90)/100);var parms = &#039;status=yes,location=yes,&#039; + &#039;scrollbars=yes,resizable=yes,directories=yes,&#039; + &#039;toolbar=yes,menubar=yes,&#039; + &#039;width=&#039; + newWidth + &#039;,height=&#039; + newHeight + &#039;,screenX=10,screenY=10&#039;;var externalWin; externalWin=window.open(&#039;&#039;,&#039;externObjLink&#039;,parms); externalWin.focus()&quot; target=&quot;externObjLink&quot;&gt;ClinicalTrials.gov&lt;/a&gt;&lt;a data-itrprs=&quot;Y&quot; data-url=&quot;/science/RedirectURL?_method=externObjLink&amp;amp;_locator=ctgov&amp;amp;_cdi=272926&amp;amp;_issn=10838791&amp;amp;_origin=article&amp;amp;_zone=art_page&amp;amp;_targetURL=http%253A%252F%252Fclinicaltrials.gov%252Fshow%252FNCT02409121&quot; href=&quot;http://clinicaltrials.gov/show/NCT02409121&quot; onclick=&quot;var newWidth=((window.screen.availWidth*90)/100);var newHeight=((window.screen.availHeight*90)/100);var parms = &#039;status=yes,location=yes,&#039; + &#039;scrollbars=yes,resizable=yes,directories=yes,&#039; + &#039;toolbar=yes,menubar=yes,&#039; + &#039;width=&#039; + newWidth + &#039;,height=&#039; + newHeight + &#039;,screenX=10,screenY=10&#039;;var externalWin; externalWin=window.open(&#039;&#039;,&#039;externObjLink&#039;,parms); externalWin.focus()&quot; target=&quot;externObjLink&quot;&gt;NCT02409121&lt;/a&gt;).&lt;/p&gt;</style></abstract></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>5</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Mark S. Ackerman</style></author><author><style face="normal" font="default" size="100%">Hofer, Erik C</style></author><author><style face="normal" font="default" size="100%">Hanisch, Robert J</style></author></authors><secondary-authors><author><style face="normal" font="default" size="100%">Olson, Gary M</style></author><author><style face="normal" font="default" size="100%">Zimmerman, Ann</style></author><author><style face="normal" font="default" size="100%">Bos, Nathan</style></author></secondary-authors></contributors><titles><title><style face="normal" font="default" size="100%">The national virtual observatory</style></title><secondary-title><style face="normal" font="default" size="100%">Scientific collaboration on the Internet</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">astronomy</style></keyword><keyword><style  face="normal" font="default" size="100%">big data</style></keyword><keyword><style  face="normal" font="default" size="100%">cyberinfrastructure</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2008</style></year></dates><publisher><style face="normal" font="default" size="100%">MIT Press</style></publisher><pub-location><style face="normal" font="default" size="100%">Cambridge, MA</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;Like many scientific communities, the astronomy community faces a coming avalanche of data as instrumentation improves in quality as well as in its ability to integrate with computational and data resources. Unlike scientific fields that are oriented around a small number of major instruments, such as high-energy physics, astronomers use a large number of telescopes located around the world that are designed and calibrated to look at celestial objects in fundamentally different ways. Both space and terrestrial telescopes are designed to observe objects across a narrow part of the energy spectrum, typically focusing on a small part of the spectrum from the infrared to X-ray wavelengths. While each telescope has the potential to reveal and characterize new astronomical objects, even more powerful would be the ability to combine the data produced by each of these instruments to create a unified picture of the observable universe. This data fusion requires federating a large number of data sets, and developing the search and analysis routines that allow investigation across multiple wavelengths.&lt;/p&gt;&lt;p&gt;The National Virtual Observatory (NVO) project is funded by the National Science Foundation (NSF) to provide the cyberinfrastructure necessary to support the federation of a large number of astronomical data sets, allowing search across multiple data sets and the development of simulations that incorporate many types of astronomical data. Through the development of tools and standardized data models, the NVO hopes to enable the combination of multiple pointed-observation telescopes and sky surveys into a large, unified data set that effectively functions as a broadband, worldwide telescope. The NVO is part of a larger effort, known as the International Virtual Observatory Alliance (IVOA), to support data federation and exchange across a number of national and regional virtual observatories.&lt;/p&gt;</style></abstract></record></records></xml>